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Dear Mr. Therrien:

I signed up for your program and then later joined as an affiliate not long after I became too sick to work in October of 2007.  I filed for disability and geared up for the fight of my life.

I hired Allsup Inc. as my representation and soon found that they were nothing more than a "monitoring service" or "go between" and would take no action to actually help me win my case.  I knew this because I was reading your email, researching and learning from the information you sent me. 

I eventually terminated my relationship with Allsup Inc. and took matters into my own hands, ensuring that I did everything you recommended that be done in order to win my case.  As of last week, I received notification that my application for SSDI was approved!  (The same day you had your last conference call, and that is why I missed it!  LOL!)  

Anyway, thanks to your help, I was approved in 4 months!  I just wanted to let you know that your efforts are appreciated very much. 

Sincerely,
Tammy Elaine McPherson
The Ultimate Fibromyalgia Resource Center

Hi Brian,

Yes, I read these, each and every one!!  Even if the subject doesn't seem to apply to me; every one that I read, I learn something!  The biggest help I get from all of your messages is HOPE!!  I have had Fibromyalgia now for 9 years, was diagnosed 2 years after I had a difficult surgery.  

It took the usual 18 months of visiting Dr.'s, having many, many tests and finally the
diagnosis.  I was asked not to come back to work from my employer at the time, until I was better so during this 18 months I had received Long Term Disability benefits.  Then, they ran out, my application to SSDI was denied, I thought I was feeling better, so went out and got another job!  I have had 10 different jobs in the last 8 years.  I used to be a high level executive making a very good living, with a busy life, a husband and children!  

Over these past years, I have taken on different work, lower paying jobs, part-time work and can keep a job for more than a year.  Last March 2010, I took a personal leave from work and have applied again for SSDI, I could not handle filling out the paperwork myself, so have hired an attorney.  I am at the Hearing Level and am waiting the results of my attorneys sending in a brief to try to expedite my hearing.  I haven't been able to make my mortgage payments since last May, I'm trying to work with my lender on a Modification Plan while I wait for them to foreclose or Social Security to come through for me.

 A lot has changed over the years with Fibromyalgia and quite a bit has stayed the same.  I don't remember anywhere I could go back in 2002 to hear about others having this condition.  I was made to feel that it was all in my head, that I could get over it, things would get back to normal, etc.

I've learned about how to help my family to understand and cope with how this has not only changed me, but our entire lifestyle by reading articles that you provide.  I've learned how to ask better questions and get things documented from my Dr.'s during my visits to be sure my attorneys have everything they need to help my case.

 It always amazes me when I open up one of your emails to see something that I was just thinking about.  For example, I recently stopped taking some medications again (this has been going on for years now) and told myself that I have to learn how to better manage my symptoms and balance my life more and try to find some different options for treatment.  Then a week later, you send out an email on that exact message!!

Thanks for all you do!
BR  
Minnesota,

Hi Brian,

Your information helped me understand issues I was unaware of.  Especially how to explain that fibro is not just an imaginary item.

Vivian Anderson
Kenosha, WI

Brian,

This information has educated and empowered me in making choices and decisions. 

I enjoyed the segments on self-employment and social security disability because I am considering both options. 

You are doing a wonderful job.  
Sherry Pryor
Dumfries, Virginia

Mr. Therrien.

I had applied for disability on May 27, 2008, and in Nov. 2008, I began to receive my disability check.

I have Fibromyalgia(chronic pain), RA, diabetes, IBS, a bone craft in my foot which did not take very well and depression. My husband & I  did not have an attorney, we went by the Disability digest and researched the internet from the disability digest. 

My sister is on disability too however, it took her nearly 3 years and she had an attorney. Wow! So is this not a proven fact that your Digest is very HELPFUL

Sincerely,

Angelia Williams
Gastonia, NC 
GenieLvtkr@aol.com

My name is Cassy and I live in Bremerton, WA  I suffer from Fibromyalgia and Severe Migraines.  Most days I wake up feeling like I didn't sleep ( and that is with the medications that my dr has me on) and feeling like Hot Pokers are being put against my legs, arms upper chest lower back etc... I cant stand the seams on my clothes to press against me.  It sends pain thru me.  

When I am at home I wear as little as possible and usually thats inside out to avoid the seams.  I am weak, have to use both hands to open the refrigerator door.. and cant lift a gallon of milk without both hands, and then only to a short distance.  I get numbness in my hands and feet and my feet always feel like they are swollen but when I look at them they dont appear to be.  

I lose blocks of time too... sometimes only minutes but sometimes its hours and thats very scary.  one day I was home watching tv at 10:30 in the morning and the next thing I knew it was 2:00 and I was standing outside my car in a grocery store parking lot a few miles from my home - alone - with my keys in my hand and nothing in the car to show I had gone shopping and no memory of any of the time in between.  My Dr said its called Fibro Fog.  It happens allot.

Then there's the migraines that completely floor me ... I cannot tolerate light or noise or stress and have to lie down in a dark quiet room. This does not make the migraine go away but it at least does not make it worse.  I am on several medications that are supposed to alleviate the migraines but they don't.  the medications for At Onset don't work because the majority of my migraines come on in my sleep.  

So I am on one that is supposed to lessen the severity and frequency, but it doesn't seem to help much at all. If I am fortunate enough to wake up without a migraine It wont be long before one comes on and then when I take the Onset med it gets worse for about an hour then it goes away for about an hour and then its back again. I have lost a lot of my abilities to think a problem thru and get frustrated/anxious and end up in tears.  It is an endless cycle and one I would be very happy to find an answer to.

My husband is home with me now all the time because in January he had 4 Strokes and can no longer work.  So at least I am not alone.

I recommend Brian Therrien's Series on Fibromyalgia for information and assistance to anyone who has similar issues as mine.

Cassy Monske

Bremerton Wa

Hi Brian,

You have been a tremendous help to me!! I had to give up a 22-yr. teaching career.

When I was denied SSD a year ago (fibromyalgia), I emailed you for help & you were a blessing! You had someone call me the next day to advise me on what to
do next.

We appealed & also applied again. Six months later, I was approved on the new claim. 

Reading info. on your website kept me upbeat & encouraged me to keep fighting. Listening to others that you have helped gave me hope. I only wish that I had contacted you from the start!

God Bless,

Cathy Bratcher
New Bern, NC. 

Hi Brian,

First off, I wanted to THANK YOU for your website! Both my sister and I are YOUNG and disabled with Fibro and it has been a very valuable tool for us.

No one talks and helps as much as you guys do about the path to disability and how it all works. I am very lucky that I was clear headed enough to start three years ago and read as much as I could to prepare for my journey.

Thank GOD I was granted disability a few months ago.  Had I not done all that I would be in a desperate situation (which a lot of us Fibros are).  We need more info like you share on your site.

I thank you again from the bottom of my heart for your services.  Don't stop doing what your doing, you are helping a lot of us out here that have no where else to go!

Sincerely,

Cynthia Dias
Folsom California

Hi Brian,

Your information has been most helpful, especially about finding a specialist a Rheumotologist to sign my disability forms.

Mary Sullivan
Quincy Massachusetts

Hi Brian,

Because of your help I knew what I needed to do sign up for disability.

> go to the Dr. more often,
> not be able to perform my job duties,
> have work restrictions, and
> have other things checked out by my Dr.

Wanda Mears,
Woodbury,
Tennessee

Hi Brian,

Thanks for helping me tell my family that I don't feel well and there will be some days that I may not be able to move at all. 

Angelia Istre
Fayetteville, Arkansas